Sickle Cell Anemia Project

 


 

The Sickle Cell Anemia Project is such a project that started in 1998 with a mandate to provide diagnosis, treatment, counseling and prevention for the patients of Sickle cell anemia in the affected belt of Dhadgaon,Nandurbar & Aheri,Gadchiroli in the state of Maharashtra.( An initiative of Maharashtra Arogya Mandal.estd.1960 ).

International Sickle Cell Expert from Jamaica (West Indies) visited our project site at Dhadgaon on 1 and 2 April 2012. Click Here to read more

Why this Belt?

Newly created Nandurbar district of the Maharashtra state was part of Dhule district. The separation of this part of Dhule district is on the basis that majority (66%) of the population from this part belongs to tribal population group & it should be possible to promote welfare schemes for tribal people on priority basis. The district is located on the extreme north part of the state on border line with neighboring states Gujarat & Madhya Pradesh. The district consists of six talukas as Nawapur, Nandurbar, Shahada, Taloda and Akkalkuwa & Dhadgaon. 75% of the population belongs to Scheduled tribes, Scheduled caste & other backwards communities. Out of this 66% of the population belongs to two major groups known as Bhilla and Pawara. Since these groups are isolated, scattered, living in geographically hilly areas, existing health facilities are inadequate and unable to co-up with their health needs. & hence remain backward in all aspect of life including health and education. They are poor and backward and hence under influence of superstitions, particularly towards health problems.

Health Problems

The health problems amongst S.T., S.C. & OBC population from these areas have been studied by Government & N.G.O. including Maharashtra Arogya Mandal Pune and to summaries these they are as follows –

  • Malnutrition.
  • Water borne and communicable diseases
  • Sickle Cell Anemia, Thalassemia ( Genetic Disorders )
  • Excess consumption of alcohol
  • Superstitions
  • Extreme poverty
  • Poor and inadequate health facilities.

What we are doing?

We have selected one Taluka (Block) from Nandurbar district known as Dhadgaon Taluka and with co-operation of tribal youths established Sickle Cell Centre which provides following facilities.

  • Diagnostic facilities
  • Possible treatment and follow up
  • Population genetic screening programme to identify carrier and sufferer.
  • Health education
  • Marriage counselling
  • Guidance for Pre natal diagnosis
  • Guidance for Family Planning
  • Training programme.

What is the issue, problem, or challenge?


This symptom begins at early age (3 to 4 years) and severity of symptoms increases with age. Patient has painful and limited life span. In addition to these symptoms one of the typical symptom experienced by patients called Sickle Cell Crisis. Whenever there is increase demand for oxygen in the body i.e. during infections,physical exercise, or excess fluid loss, the Sickling process gets accelerated.About 22% tribals in the Nandurbar area of Maharashtra are carrier of this disorder.

How will this project solve this problem?


MAM has established a Sickle Cell community control center in tribal area of Dhadgaon, Dhule district in Maharastra since 1998 and have made arrangements to provide following facilities: -Diagnostic facilities. -Patient Treatment and follow-up. -Population genetic screening program to detect carriers & sufferers. -Health education -Marriage counseling -Genetic counseling -Training facilities This project will provide financial assistance to cure this rare disease in tribal India

Potential Long Term Impact 


MAM has screened more than 100,000 tribals for sickle cell. Approx 1.5 % of the tribal people are suffering from this incurable disease, and 22.5% tribals are carrier for the gene in this area.At present we organize regular health camps, provide medical kits, the centre is carrying out research on sickle cell due to which there is improvement in anemic condition, intensity of crisis is decreased & also duration & recurrence of the crisis is prolonged. Aim is to eradicate the disease in long term

Project Message 


MAM supported me to overcome permanent disability by helping for Total Hip Replacement. I am now able to perform routine activities and also take part in the camps conducted by MAM.
- Manoj Pawara , A sickle cell patient

 

    Late Dr. S.T. Gujar( Founder )

National Seminar on Sickle Cell Anemia        2015, March,26

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Maharashtra Belt

Nandurbar | Gadchiroli

Project: Sickle Cell Anemia